Etică și educație terapeutică privind pacienții cu epilepsie [Articol]

Abstract

Therapeutic education” programs are essential tools for improving and balancing the quality of life of patients with epilepsy. These programs assist both the patient and their family in understanding the condition, the necessity of treatment, and ways to manage their health. Therefore, therapeutic education is considered a fundamental part of the patient’s long-term treatment and family support. Long-term treatment and disease management involve various moral challenges that can arise from the patient’s somatic, psychological, or social condition. Thus, the dialogue among participants in a therapeutic education program is based on multiple ethical benchmarks, each offering practical perspectives on the therapeutic relationship and patient development. From this perspective, developing a therapeutic culture for patients with epilepsy requires an ethical approach that goes beyond merely conveying medical information. This ethical analysis leads us to the possibility of integrating three ethical theories, such as: virtue ethics, deontology, and principlism. The purpose of this study is to combine moral character, moral duty, and ethical principles to create a therapeutic relationship that supports both effective disease management and the moral fulfillment of the physician, the patient, and their family. We intend to integrate all ethical frameworks and not only some of them, using them complementarily.